About Us
About People Beating Cancer |
The peoplebeatingcancer.org website is an "interactive health communication application." The Cochrane Collaboration defines an IHCA as "computer-based, usually web-based, information package for patients that combine health information with at least one of social support, decision support, or behaviour change support."
When I was first diagnosed with multiple myeloma in February of 1994, I went to the hospital, listened carefully to an oncologist and did everything that told me to do. My induction therapy led to a partial remission and then my autologus bone-marrow transplant, several months later, resulted in a partial remission.
My cancer returned twice more over the next 21 months at which time my oncologist told me that nothing more could be done for me. I turned to the Internet and began to learn about the therapies and lifestyle changes that let to my complete remission. I have been completely cancer free since April of 1999.
Through the Internet and what I learned from it, proved to be so valuable to me, I decided to start a 501c3, The Galen Foundation, and launch an IHCA, first Beating-Myeloma.org and now PeopleBeatingCancer.org.
The mission of PeopleBeatingCancer.org is to help cancer survivors and caregivers manage their health and live better, longer lives.
The Cochrane Collaboration's discussion of interactive health communication sums up the goal of PeopleBeatingCancer.org-
"People with chronic disease have multiple needs, including information about their illness and the various treatment options; social support; support with making decisions; and help with achieving behaviour change, for example, changes in diet or exercise. Computer-based programmes which combine health information with online peer support, decision support, or help with behaviour change may be one way of meeting these needs, and of helping people to achieve better health."
http://www2.cochrane.org/reviews/en/ab004274.html |
|
|
|
About Lotsa Helping Hands
Lotsa Helping Hands was created to support family caregivers and volunteers by empowering their circles of community who are eager to help those in need.
Our mission is to provide the communication resources facilitating a world where caregivers feel empowered to ask for help, and in so doing, improve their own health and quality-of-life; volunteers can become part of the solution when family, friends, neighbors or colleagues are in need of help, and community becomes a recognized way to find meaning in both giving and receiving.
Our Story
We created Lotsa Helping Hands after witnessing four years of awe-inspiring community support and response to a family member’s serious medical crisis. Seeing how earnestly friends wanted to help, and juggling the difficulty of organizing their assistance, we designed Lotsa Helping Hands with the understanding of how to bring together a variety of social circles and what a resulting community like this would need. Lotsa Helping Hands is easy to use and requires no training for either the Coordinator who creates the community or the members who participate.
Our Commitment to Philanthropy
Because Lotsa Helping Hands was inspired by the outpouring of support during our own caregiving experiences, we have a strong commitment to giving back, ourselves. We support the nonprofit sector and align with national organizations who offer our service to their members and constituents. We donate pro bono expertise and financial resources to the nonprofit organizations we serve.
What to Do Next
Choose a coordination service that might be right for you and your circles of community. Learn more about how it works or create your own community today.
Share your story on our Facebook Page
If you are a member of the media, please visit our media room.
|
A service of
|
